Reprinted from eldercare.gov
What is Respite Care?
Millions of Americans provide unpaid assistance each year to elderly family, friends, and neighbors to help them remain in their own homes and communities for as long as possible. Sometimes these caregivers need time off to relax or take care of other responsibilities. This is where respite care can be helpful. It provides the -family caregivers with the break they need, and also ensures that their elderly loved one is still receiving the attention that he or she needs.
Respite care is not all the same. Respite can vary in time from part of a day to several weeks. Respite encompasses a wide variety of services including traditional home-based care, as well as adult day care, skilled nursing, home health, and short term institutional care. More specifically respite care may take any one of the following forms:
- Adult Day Care: These programs are designed to provide care and companionship for frail and disabled persons who need assistance or supervision during the day. The program offers relief to family members or caregivers and allows them the freedom to go to work, handle personal business or just relax while knowing their relative is well cared for and safe.
- Informal and Volunteer Respite Care: This is as simple as it sounds. It is accepting help from other family members, friends, neighbors, or church volunteers who offer to stay with the elderly individual while you go to the store or run other errands. Sometimes your local church group or area agency on aging (AAA) will even run a formal “Friendly Visitor Program” in which volunteers may be able to provide basic respite care, as well. Many communities have formed either Interfaith Caregiver or Faith in Action Programs where volunteers from faith-based communities are matched with caregivers to provide them with some relief.
What Is In-Home Respite Care?
Generally speaking, in-home respite care involves the following four types of services for the more impaired older person:
1) Companion services to help the family caregiver supervise, entertain or just visit with the individual when he/she is lonely and/or wants company.
2) Homemaker services to assist with housekeeping chores, preparing meals or shopping.
3) Personal care services to to assist the individual bathe, get dressed, go to the bathroom and/or exercise.
4) Skilled care services to assist the family caregiver in tending to the individual’s medical needs such as medication management.
How Do You Pay for Respite?
The cost of respite care varies with the type of agency and the services needed, but federal and/or state programs may help to pay for it. Long term care insurance policies may cover some of the cost of respite care. Your local Area Agency on Aging (AAA) will have more information on whether financial assistance is available, depending on your situation and where you live.
True Case Study
Silver Sage Magazine’s Publisher got a call from her mother when she collapsed in a local grocery store due to an atrial fibrillation. She fell onto herself and broke three bones in her ankle. She had surgery to fix the ankle and spent two weeks in rehabilitation. However, when she came home – Tracy worked full time so she could not help her mom do everything. Tracy needed help for her mom. Tracy called Bayada. Founded by Mark Baiada in 1975, Bayada provides home health care in 23 states in US and 6 different countries.
Bayada sent an occupational therapist twice weekly to help her mother learn how to get around with the knee scooter, take her pulse, check on her medications and provide general help for her mother to learn navigating with a very broken ankle. Bayada also provided a home health aid who came every day from 8 am – 12 noon to help her mother get breakfast, put dishes away, clean her house, get her bed made and more importantly provide company for her mother during the 7 weeks of recovery. Tracy was then able to see her mother many times during the week after work to help her with dinner and provide some company in the later part of the day.
Can the National Family Caregiver Support Program Offer Respite?
The enactment of the Older Americans Act Amendments of 2000 (Public Law 106-501) established an important program, the National Family Caregiver Support Program (NFCSP). Funds have been allocated to states to work in partnership with area agencies on aging and local and community service providers to put into place multi-faceted systems of support for family caregivers. A specific component of these systems is respite. That could include, for example, respite care provided in a home, an adult day-care program or over a weekend in a nursing home or an assisted living facility. For more information on the NFCSP visit the Administration on Aging website at http://www.aoa.gov/AoARoot/AoA_Programs/HCLTC/Caregiver/index.aspx.
How Can I Ensure that Respite Care is Quality Care?
When evaluating a respite care program, family members should check to see if it is licensed by the state where they live (where required) and if the caregivers have the qualifications necessary for the job. They can ask respite care program managers the following questions to assess their credentials:
- Are families limited to a certain number of hours for services needed?
- Can the provider take care of more than one person at a time?
- Can family members meet and interview the people who will be providing the respite care?
- Does the program provide transportation for the caregiver/senior?
- Does the program keep an active file on the senior’s medical condition and other needs? Is there a written care plan?
- How are the caregivers screened for their jobs?
- How are the caregivers trained? Do they receive extra training, where appropriate, to meet specific family needs?
- How are the caregivers supervised and evaluated?
- How much does the respite care cost? What is included in the fee?
- How far ahead of time do family members have to call to arrange services?
- How do the caregivers handle emergencies? What instructions do they receive to prepare them for unexpected situations (being snowed in or losing power during a thunderstorm, for example)?
- How is the program evaluated? Are family members contacted for their feedback? If so, review their comments!
Second, when interviewing an in-home respite care aide, you may want to ask these questions:
- Are you insured?
- Do you have any references? What are they?
- Do you have any special skills that might help you with this job?
- Have you ever worked with someone in the same medical condition as my loved one?
- How would you handle the following situation? (Cite examples of challenges you have encountered as a family caregiver.)
- What is your background and training?
- What are your past experiences in providing respite care?
- When are you available? Do you have a back-up/assistant if you are unable to come when expected?
- Who can I talk to at your agency if I am concerned about something?
- Why are you interested in this job?
- Why did you leave your last job?
Where Can I Learn More About Respite Services?
The following organizations provide useful information to caregivers on a variety of topics including respite:
The Alzheimer’s Association provides education and support for people diagnosed with the condition, their families, and caregivers. To find a local chapter closest to you or to order a copy of the association’s respite care guide visit their website at http://www.alz.org or call 800-272-3900.
The Family Caregiver Alliance runs a resource center and publishes fact sheets and a newsletter with tips for family caregivers. The organization can be reached by calling 1-415-434-3388 or visiting its website at:
Senior Guidance is an organization dedicated to providing senior living assistance to the elderly. In additional to providing a number of helpful senior living resources and articles, we enable seniors and caregivers to search and find 40,000+ long-term care facilities in more than 7,500 cities across the United States.
The National Alliance for Caregiving is a joint venture of several private and governmental agencies. The alliance web site provides useful information and links for caregivers. You can contact this resource by visiting its website at:
Information concerning adult day services can be obtained from the National Adult Day Services Association at (703) 610-9005 or by visiting their website at:
And of course, here is Bayada’s information – Tracy was quite happy with their services.
To find out more about hospice programs where you live, you can contact your local aging information and assistance provider or Area Agency on Aging (AAA). The Eldercare Locator, a public service of the Administration on Aging (at 1-800-677-1116 or http://www.eldercare.gov ) can help connect you to these agencies.
Silver Sage Magazine pool of writers and editors are #silversagers. We love writing and contributing to our audience in order to provide informative, timely and compelling content. We hope you find our articles relevant with a mature, sophisticated and insider’s voice.